Preparing to manage
SEIZURE damage starts with self-advocacy
Let your experiences be heard
Since seizures may affect everyone differently, it’s important to have an honest TALK with your healthcare provider about how seizures are impacting your life
Tell them about all of your experiences, concerns, and needs
Ask if more can be done to prepare yourself as
fully as possible
Learn about
the lasting mark
of seizures
Keep the discussion
going with your
healthcare provider
Sharing your experiences can benefit everyone
- Your healthcare provider can only help you if they know exactly what’s happening, what your concerns are, and what you need
- Keep in mind that you’re not just speaking up for your own health—you’re advocating for the well-being of your care partner and loved ones, too
HELPING HAND
Be persistent—it may take more than one TALK with your healthcare provider to make a change in your seizure management plan.
Put your unspoken thoughts about seizure uncertainty into words, in minutes
Epilepsy: Words Unspoken is a simple, guided resource that can help you describe what it’s like living with the possibility of seizures. You can send these words to yourself and share them with your healthcare provider at the next appointment. This can spark a discussion about being prepared if a seizure happens while you’re going about your day.
Start Here
If you’re a care partner, join the discussion
It can be difficult and frustrating for people with epilepsy to keep track of their seizures and have productive talks with their healthcare providers
You can help light the way.
Learn about the lasting effects of seizures
Advocate for the person you care for
Monitor their seizures and identify any triggers
Plan what to do if a seizure occurs
Remember, you can shine a light on things that the person you care for can’t—especially during and after a seizure. This is all valuable information that their healthcare provider should know.
It can be difficult to know or remember what to say to your healthcare provider.
Download a free set of appointment talking points that provides tips on how to discuss your concerns and needs.
